Organ and Tissue Donation Awareness Week was held from April 24 to 30, 2022. For the occasion, I had been planning for two months to try to make a big media coup. I wanted to talk about my story to eventually find a kidney, and I also wanted to advance the…
These days, I’m having a hard time. I’m tired, and I also often feel too weak to have fun when I’m doing something. I’m bored, not being able to do anything. Or maybe what makes me feeling this way is just that I am dying, and I’m aware of it. Most…
For the past two months, I have been meeting more and more people related to kidney disease and organ transplantation. I’m trying to get to know my community better, and it means a lot to me to hear other people’s stories. Surprisingly (for me, anyway), everyone’s story with the disease is…
With all that is happening in Ukraine, I have been wondering for a few weeks what happens to dialysis patients or transplant patients who see their daily lives shaken up by war. In addition to injuries, the collapse of the health system is one of the greatest threats to the health…
This morning I was wondering how I was doing. In the last two weeks, I have been writing an article on dialysis patients and transplant receivers in Ukraine, but I can’t concentrate enough to write it decently, even if the search for information is over. I’m not achieving what I want…
As I told you last week, since the end of spring break, my energy has been very low. One of the symptoms of end-stage renal failure is great fatigue, which does not make a great team with my constant nauseas. 😛 What does this have to do with spoons? you may…
Last Sunday, Luisa Miniachi, Coordinator at the Montreal Section ofthe PKD Foundation of Canada, contacted me through my facebook page. I called her on Monday, and she told me she could help me share my story, through her network and that of the Foundation. An express request Confronted with the dark…
March is the nation kidney month! It’s also the month of my birthday! Coincidence? I don’t think so! 😛 This is clearly a sign for me to talk to you more about this subject! To start this month, I’ll start with the basis: what’s the point of a kidney? What are…
Last week, I learned something that really shook me. A person in a group for people suffering of renal failure in Quebec finally got a kidney after 4 and a half years of dialysis. This person’s blood type is O+, like me. Honestly, I never even imagined that I might have…
That’s right, today is the grand opening of the new website La guerrière MPR! I’m very proud to be able to present it to you, and I can’t wait to add content on Polycystic Kidney Disease (PKD)! I’m going to start next week with an article on the basis of the…
