I had covid three weeks ago, and it was intense for a few days. I didn’t have trouble breathing, but I had a lot of fever, and even had hypothermia! (34.5C) I came out weakened for several days. I had to take naps every day for a week, even though I…
September 4 is the National Polycystic Kidney Disease (PKD) Day, recognized by the Government of Canada and 41 cities across the country. We are more than 13 million individuals of all origins who suffer from this hereditary disease, and there is no cure. It is the most common hereditary disease and…
Good news! As I promised myself at the beginning of July, I wrote the first 10,295 words of my novel project! 333 words minimum per day, for 31 days. I did this in the evenings, around 9pm, when the house was quiet and I only had to do that before I…
A few weeks ago, I saw several of my friends after a few years without seeing them. The pandemic has obviously complicated things, but I also left the Montreal area in 2019 to start a new career. So it’s been a long time since I’ve seen them, and I couldn’t wait…
On June 14, 2022, I attended a virtual lecture given by the Kidney Foundation of Canada. Whether you are in end-stage kidney disease, have received a transplant or are immunosuppressed for another reason, we all ask ourselves a question: what do we need to know to protect ourselves in a world…
Earlier this month, I told you about the Ride to the Moon Challenge, a bikeathon organized by the PKD Foundation of Canada. This bikeathon that lasts the whole month of June is very important and allows us to raise funds to find a cure for Polycystic Kidney Disease (PKD). As you…
Last week, I met with a new nephrologist, a kidney specialist, at the acute kidney clinic where I am being treated. I got the impression to be received without judgment, and that he was looking for solutions to my state as a comatose brain. I was honestly almost mentally absent throughout…
When waiting for an organ transplant, it is important to know what to put in your hospital bag so you don’t forget anything. In addition, when we are on the waiting list, we do not know at all when we will be called, so we need a bag ready at all…
Polycystic Kidney Disease (PKD) is an inherited disease where cysts form in the kidneys. Over the years, cysts multiply and tear the kidneys, until they cause kidney failure. To date, there is no cure for PKD. The only options for a person with the disease and end-stage renal failure are dialysis…
The end of the mask mandate in Quebec as of May 14, 2022, for me, means a suddenly more dangerous world. I am mainly concerned about two things. First, I am one of the populations at risk of developing a severe form of Covid 19. Secondly, if I develop covid and…
