Blog, My experience of PKD

The time my face worried me

4 photos de Judith fatiguée

Last Sunday, Luisa Miniachi, Coordinator at the Montreal Section ofthe PKD Foundation of Canada, contacted me through my facebook page. I called her on Monday, and she told me she could help me share my story, through her network and that of the Foundation.

An express request

Last Tuesday, March 8, she wrote to me at around 3 p.m. to ask me if I could send her a short video on the same day. She wanted to publish several stories of inspiring women for Women’s Rights Day, and I was lucky that she thought of me for that occasion. As you will see, asking for this on that day was perfect!

The same day, I was completely exhausted. I told myself that I was going to take advantage of my exhaustion to work more (:P) and film myself a little while I talk about my situation. I don’t always look that sick, so I had to use it! 😛

A few hours later, I sent her the following video:

Confronted with the dark circles below my eyes

After succinctly working on my video, I became worried about myself! The depth of the dark circles below my eyes was clearly alarming!

For some time now, I have been working a lot on my page and my web presence. While this is important if I don’t want to stay off work forever, the fact remains that I’m off to rest! It’s the eternal dilemma I have been living with since I started working to increase my number of followers 😛

I like working, it gives me a purpose. I need one. I am passionate, and I have always tended to do as much as I can and constantly test the limits of my energy. But I have to pay attention to myself.

So I took Wednesday and Thursday off, watching Hunter X Hunter (an anime) with Oscar (our youngest cat). I also babysat my 9 month old niece for an hour and a half (she really doesn’t understand why I put her toys on my head! 😛 She’s still very determined to go get them and put them back on the floor ♥), and I walked quite a bit with my boyfriend. We even went to dinner at Café Frida, a vegan restaurant in Trois-Rivières where we had our second date 3 years ago already ♥

All this made me feel a little bit better.

I will try to look at my face more often to assess the depth of the dark circles 😛 As I often say, the strength of my personality is what keeps me going, but this is not a wise way to manage your energy.

Next week, I’ll write about how you manage your energy when you have a chronic illness.

See you soon!

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