Whew! For the past two weeks, I’ve been sleeping even worse than usual. I’m spending my nights dozing off, always close to waking up. I dream a little, and then I kinda think for an hour about the 15 minutes of dreams that I just had, and I do that like 7 times during the night. I get up to go to the bathroom, the cats come to say hello, and I go back to bed to “sleep” the rest of my night.
During the day, I feel slower. More dragging. More dispersed. More dissipated.
My website is also moving slower. I started it a month ago, and it was almost finished two weeks ago. Today, it is still almost finished! 😛 I have moved much more slowly in the last two weeks than in the two before, because of this terrible mental fog. I admit that it is a little frustrating.
But to tell you the truth, it’s okay like that. It’s a hobby, no one is depending on me, I can do stuff to the rhythm of my energy. It gives me something to do, and even if I can’t wait for the site to be Live so that my experience can be found through search engines (which my facebook blog can’t do), I must accept snail speed.
The important thing is to try every day. No matter what I manage to do, it’s always more than I could have done if I hadn’t tried.
Honestly, I’m having a lot of fun learning how to make a web page again! The process of creating a website is no longer like when I made one at 12 years old; today there is no need to code everything myself in html. When I created this new site, I thought I would be finished in a week, having my experience, a content base already created and the new means available to create websites. I actually find it almost more complicated than it was before, I kinda feel limited in my creation by the tools available to me. But I’m learning! And it’s coming along.
Today I will try to install a translation plugin, to be able to translate my content in English. (the fact that your can read this website in English is the proof it worked :P) I’m thinking of translating it into Spanish too eventually, since I’ve been learning Spanish for 2 and a half years on the Duolingo app and I’m getting better! I’ll still have to check the automatic translations, but I can’t wait for my content to reach more people! I searched a bit, and I couldn’t find another blog on Polycystic Kidney Disease (PKD), if you aren’t counting the Foundations that deal with this topic. Since PKD affects about 13 million people worldwide, I know there are plenty of people who want to learn and are wondering how others are living with this disease. I hope to be able to answer some of their questions, and be able to guide them to other resources!
And if I manage to raise awareness about the disease and my need for a kidney to live, who knows where it can lead! #wishfulthinking
I can’t wait to share it with you! See you soon!
#iflifegivesyoulemons #tranformingabadexperienceintosomethingpositive
