These last few days are not good days. I’m having a hard time thinking, I’m so so tired, and I don’t want to do anything. It’s not okay. Brushing my teeth is a struggle with myself to find energy. Life is long waiting to live again. There is a month and a half left before the transplant, and I CAN’T WAIT TO FEEL BETTER!
I think my condition is worse right now because my body has already absorbed all the iron I received by infusion in August. I will call my nephrologist to see if I can have some treatments after my blood test this week. We quickly forget how unbearable life can be without energy. Iron treatments didn’t give me back 100%, but it gave me enough to go on projects and move them forward! If I want to do NaNoWriMo in November, it is not with the energy I have now that I will manage to write 1667 words every day for a month! My novel will not be written alone, and I need energy to advance it… And the disease makes me so cold, it’s ridiculous how many blankets I’m using right now…
Honestly, since last week, I just have the energy to go lay down, and maybe listen to a TV show a few minutes before I fall asleep. That’s all I can do. It’s tough on morale, and it’s really long.
But I am making my pre-transplant preparations, because if all goes well, I will receive a kidney transplant on December 1st, so in less than a month and a half! I have to think about it; we will be isolated at home two weeks before the operation, and I will not be able to drive for 3 months after the transplant!
Preparing for isolation and options
I have my car tires to change before isolation (appointment scheduled) and my flu shot to get (done). I also need to find out what travel vaccines I have to get because the vaccines I will receive after the operation will be less effective because I will be immunosuppressed. Are there any vaccinations I should take now if I know we’re going to make those trips?
Photo by Andrea Piacquadio on Pexels.com
I also need to think about the holidays and the Christmas gifts I want to buy. If these are things I need to buy in person, I have to do it before my isolation! And for the Christmas tree, I don’t have a solution yet since normally, we go as a family to cut one, but the place where we buy it does not open before our isolation! In addition, we will surely not see our families this year since my immune system will be too fragile due to medication changes, for that too we must warn everyone.
I’m also planning my transports after transplant. I will have a lot of appointments during the first 6 months and I will not be able to drive after the operation for 3 months. So I’m going to need help. My boyfriend will go with me at first, and then my mother agreed to help me. It’s Trois-Rivières to Montreal several times a month, it’s a big commitment!
And I started preparing my will. Like any operation, transplantation involves risks. I don’t intend for it to be complicated if I die. This reflection gives a lot of morbid conversations with those around me to find out what they want if I die! I met the notary, the majority of things are decided, it will be done and signed before the day T! (for transplant!)
It’s progressing well! And now, I go back to lie under the blankets, waiting for the day to pass!
See you soon,
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