pkd warrior surprise
Blog, My experience of PKD

The best news in the world!!

Last week, I received a call from the transplant nurse at Maisonneuve-Rosemont Hospital. On the phone, she gave me some big news: there is a potential donor who has completed all the necessary tests. And he is compatible with me! Uh, what??? Yes yes, you got it right! I should have…

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Blog, My experience of PKD

The anger that lives in me

I had covid three weeks ago, and it was intense for a few days. I didn’t have trouble breathing, but I had a lot of fever, and even had hypothermia! (34.5C) I came out weakened for several days. I had to take naps every day for a week, even though I…

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Blog, My experience of PKD

Living while I feel myself dying

These days, I’m having a hard time. I’m tired, and I also often feel too weak to have fun when I’m doing something. I’m bored, not being able to do anything. Or maybe what makes me feeling this way is just that I am dying, and I’m aware of it. Most…

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théière brisée recollée
Blog, My experience of PKD

It’s not perfect, but I’m trying

This morning I was wondering how I was doing. In the last two weeks, I have been writing an article on dialysis patients and transplant receivers in Ukraine, but I can’t concentrate enough to write it decently, even if the search for information is over. I’m not achieving what I want…

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