I had covid three weeks ago, and it was intense for a few days. I didn’t have trouble breathing, but I had a lot of fever, and even had hypothermia! (34.5C) I came out weakened for several days. I had to take naps every day for a week, even though I…
Good news! As I promised myself at the beginning of July, I wrote the first 10,295 words of my novel project! 333 words minimum per day, for 31 days. I did this in the evenings, around 9pm, when the house was quiet and I only had to do that before I…
A few weeks ago, I saw several of my friends after a few years without seeing them. The pandemic has obviously complicated things, but I also left the Montreal area in 2019 to start a new career. So it’s been a long time since I’ve seen them, and I couldn’t wait…
Last week, I met with a new nephrologist, a kidney specialist, at the acute kidney clinic where I am being treated. I got the impression to be received without judgment, and that he was looking for solutions to my state as a comatose brain. I was honestly almost mentally absent throughout…
The end of the mask mandate in Quebec as of May 14, 2022, for me, means a suddenly more dangerous world. I am mainly concerned about two things. First, I am one of the populations at risk of developing a severe form of Covid 19. Secondly, if I develop covid and…
Organ and Tissue Donation Awareness Week was held from April 24 to 30, 2022. For the occasion, I had been planning for two months to try to make a big media coup. I wanted to talk about my story to eventually find a kidney, and I also wanted to advance the…
These days, I’m having a hard time. I’m tired, and I also often feel too weak to have fun when I’m doing something. I’m bored, not being able to do anything. Or maybe what makes me feeling this way is just that I am dying, and I’m aware of it. Most…
For the past two months, I have been meeting more and more people related to kidney disease and organ transplantation. I’m trying to get to know my community better, and it means a lot to me to hear other people’s stories. Surprisingly (for me, anyway), everyone’s story with the disease is…
This morning I was wondering how I was doing. In the last two weeks, I have been writing an article on dialysis patients and transplant receivers in Ukraine, but I can’t concentrate enough to write it decently, even if the search for information is over. I’m not achieving what I want…
Last Sunday, Luisa Miniachi, Coordinator at the Montreal Section ofthe PKD Foundation of Canada, contacted me through my facebook page. I called her on Monday, and she told me she could help me share my story, through her network and that of the Foundation. An express request Confronted with the dark…
